About our family

Me: Mother, marketer, blogger on a unique journey. Contact on Twitter on @hburness.

Husband: Patient, kind husband and father. The rock to all of us. Takes up all the exercise time.

Harrison: Funny, loving, Michael Jackson-obsessed six year old son and big brother to Marigold. Her best friend, her protector, her champion.

Marigold: Serene, sweet-natured, golden-haired Marigold. Our unique little girl who changed our lives and completes our family. Proving to the world that different is beautiful.

5 thoughts on “About our family

  1. Helen this is really beautifully written and so true about her unique energy. She is captivating because of her calmness and loveliness :). We love having her at nursery when she comes.

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  2. We have just found out that our 6 month old daughter has a Genetic disorder so far all we know is that is extra on Chromosome number 3 and I have just sat and cried watching your story on 24 hours in A & E and how it all started was exactly how we got to find out something wasn’t quite right and after 3 months of in and out of hospital we still have a lot to learn but to know we are not alone is so very reassuring at such a vunarble time

    Marigold is just beautiful xx

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    • Samantha, have you been put in contact with Unique, the rare chromosome disorder charity? They will be able to put you in touch with others who have similar duplications. We have a little 3q group and are in touch every week to support and help. Their website is http://www.rarechromo.co.uk, their secret FaceBook page is my lifeline!

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  3. I have been in contact with Unique after your recommendation thank you so much as so far we have been left in the dark and alone in what feels like a lifetime of the unknown and now feel a little relieved that I have found a form of support for questions I may have

    Thank you so much for your response it is so very much appreciated

    Hope you and your beautiful family are doing well xx

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